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Data dictionary : NetSarc


Birth date
ID : 140
Type : Free value
Content : DATE
Mandatory : Yes
Multiple values : No
Unique : No
Description : The patient's birth date

Sex
ID : 141
Type : Constrained
Content : TEXT
Mandatory : Yes
Multiple values : No
Unique : No
Description : The patient's gender
Possible values :
Female, Male

Patient information
ID : 1032
Type : Constrained
Content : TEXT
Mandatory : No
Multiple values : No
Unique : No
Description : Consent information
Possible values :
Uninformed, Addressed mail, No opposition, Opposition, Consent

Initials
ID : 1031
Type : Free value
Content : TEXT
Mandatory : Yes
Multiple values : No
Unique : No
Description : Patient initials : 4 characters (2 of Lastname, 2 of Firstname)Attention to compound names

Significant previous history
ID : 1
Type : Constrained
Content : TEXT
Mandatory : No
Multiple values : Yes
Unique : No
Description : No: no significant previous historyNF1: presence of neurofibromatosis type 1 or Recklinghausen diseaseNF2: presence of neurofibromatosis type 2Radiation therapy: tumour developed in a previously radiated areaLymphoedema: tumour developed on a preexisting lymphoedemaGardner: presence of a Gardner syndromLi Fraumeni: presence of a Li Fraumeni diseasePrevious cancer: the patient has previously developed another cancer different from the current tumourOther: other significant previous history with a possible link with the current tumour
Possible values :
No, Previous cancer, NF1, NF2, Gardner syndrome, Li Fraumeni syndrome, Retinoblastoma syndrome, Immunodepressed - HIV, Immunodepressed - other, Ollier disease, Maffucci syndrome, Paget disease, Multiple osteochondromas, McCune-Albright syndrome, Rothmund-Thomson syndrome, Werner syndrome, Cherubism, Other genetic disease, Other, Unknown, Familial GISTs, Stratiakis-Carney dyad, Carney Triad, Other malignancy in family

Date of last contact
ID : 76
Type : Free value
Content : DATE
Mandatory : No
Multiple values : No
Unique : No
Description : Date of the last follow up evaluation or date of death

Vital status
ID : 1075
Type : Constrained
Content : TEXT
Mandatory : No
Multiple values : No
Unique : No
Description : Vital status at last contact
Possible values :
Alive, Dead

Significant previous history detail
ID : 1018
Type : Free value
Content : TEXT
Mandatory : No
Multiple values : No
Unique : No
Description :

Diagnosis during pregnancy
ID : 1087
Type : Constrained
Content : TEXT
Mandatory : No
Multiple values : No
Unique : No
Description : Diagnosis during pregnancy (CALG network enrollment)
Possible values :
Yes, No

Quality control NetSarc
ID : 1089
Type : Constrained
Content : TEXT
Mandatory : No
Multiple values : No
Unique : No
Description : Quality control NetSarc performed
Possible values :
Yes, No

Date of control
ID : 1090
Type : Free value
Content : DATE
Mandatory : No
Multiple values : No
Unique : No
Description : Date of quality control

Centre (NetSarc)
ID : 1071
Type : Constrained
Content : TEXT
Mandatory : Yes
Multiple values : No
Unique : No
Description : Centre NetSarc
Possible values :
Lyon CLB, Hôp. Civil Strasbourg, Labo. des Feuillants, Labo. de Limoges, KLEUVEN, Institut d'histopathologie de Nantes, Hôp. Pontchaillou, Ambroise Paré APHP, Hôp. Gabriel Montpied, LUMC, Hôp. Charles Nicolle, Hôp Pasteur, Heidelberg, Haut-Lévèque Bordeaux, Cy-Path, Croix Rousse Lyon, CPS Strasbourg, Lausanne, Hôp. Nord Marseille, Lyon Edouard Herriot, Mannheim, MEDIPATH, Milan INT, Padova UNIPD, Paris Henri Mondor, Purpan Toulouse, Rangueil Toulouse, Saint-Louis, Service d'anapath de Brest, St Etienne ICLN, Tübingen, Villejuif IGR, Warsaw Cancer Center, APHP Bichat, Cabinet de Douai, Cabinet de la Roquette, Cabinet de Reims, Cabinet de Rennes, Cabinet d’Amiens, Cabinet Mathurin, Centre Patho de Metz, Bruxelles, Centre Patho Dijon, Bordeaux Pellegrin, Bonn, APHP Saint-Antoine, CHRU De Dijon, CHRU Lille, CHRU Montpellier, CHU Amiens, CHU Rouen, CHRU Angers, CHU Nancy, Bergonié, Curie, Nice CAL, Dijon CGFL, Caen CFB, Marseille IPC, Nancy ICL, Lille COL, Montpellier ICM, Angers ICO, Nantes ICO , IUCT Toulouse, Strasbourg CHU, CJP, Timone, Cochin, Rennes CEM, Limoges Dupuytren , Tours Trousseau, Rouen CHB, Lyon IHOP, Nantes CHU, Reims IJG, Reims CHU, Besançon CHU, La Réunion CHU, Tenon, Pitié Salpétrière, CHRU Caen, CHRU Brest, Bicêtre, CHR ORLEANS, Nice CHU, Cabinet Bièvres, Atalante Pathologique

Creation date patient
ID : 181
Type : Free value
Content : DATE
Mandatory : No
Multiple values : No
Unique : No
Description : The date when the patient has been created in the database